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Sarah Sullivan, 35, has seen over 200 different doctors in her lifetime and had her first open heart surgery at 2 months old.
A rare blood disease has left Sarah with few options, but she has chosen to live the rest of her life enjoying every moment in the coziness of her home, receiving care and support from the EveryStep Hospice team.

Sarah has become dependent on a trilogy ventilator machine, allowing her to breathe comfortably and maintain her oxygen levels. Medicaid does not cover this type of care. Fortunately, the EveryStep Foundation has been able to fund the expenses. Not only has our organization played a critical role in Sarah’s level of comfort, health and quality of life, but the EveryStep team has helped her find joy. Last year, our Foundation paid to have Sarah’s sister and her family flown in for the holidays. It was the first time in 20 years the family had been together on Christmas.

 


 

Our Team

515-271-1335   |  Send Us an Email

Azure Christensen

Executive Director

Jane Flanagan

Development Coordinator

Blair Ryan

Donor Relations Manager

Sara Lemke

Events Coordinator

 


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Blog

October 22, 2018 A Story from our Foundation: Sarah Sullivan

Sarah Sullivan, 35, has seen over 200 different doctors in her lifetime. She had her first open heart surgery at just 2 months old. Sarah has never given up on life despite several critical surgeries, a rare blood disease Mayo Clinic named the "Sarah Sullivan Syndrome", and devastatingly low levels of oxygen. She continues to have an upbeat spirit and is surrounded by a family that loves and cherishes her.

August 1, 2018 Gaiana and John Tapscott: From long-term volunteers to clients

Gaiana and John Tapscott were no strangers to EveryStep Care & Support Services. The couple served as long-term volunteers for the non-profit organization's hospice program.

May 11, 2018 Couple to Cap Wedding Day with Benefit for Amanda the Panda

Jennifer Rhoads and Clark Smith know what it's like to live through the loss of a spouse - and to have the fortune to find love again. They will celebrate that love on their May 19th wedding day by hosting Panda Palooza, an event to benefit the grief support services provided by EveryStep Grief & Loss Services' Amanda the Panda program. Rhoads and Smith felt moved to host the charity event because they and their three daughters had experienced the care and support offered by EveryStep and the Amanda the Panda program.